Resources
For Advocacy Organizations
FAIR Act: Social Media Toolkit
This toolkit was created to help FAIR Act advocacy partners communicate their organization’s support for the FAIR Act and increase awareness across the rare disease community.
The materials can be used across social media channels, member newsletters, email communications, websites, and other advocacy outreach efforts. Each asset is designed to be easily customized with your organization’s logo and shared directly with your members, supporters, patients, caregivers, and broader community.
The goal of this toolkit is to:
- Highlight your organization’s endorsement of the FAIR Act
- Educate your community about the importance of the legislation
- Amplify awareness of rare disease policy issues
- Encourage supporters to learn more at FAIRActNow.com
Partners are encouraged to incorporate these assets into existing communications and tailor accompanying copy to best resonate with their audiences while maintaining consistent FAIR Act messaging.
FAIR Act: Social Media Channels
When posting content from this toolkit, please tag the FAIR Act profiles on the respective channels. Where to tag the FAIR Act is indicated in the social posts by [tag: FAIR Act].
FAIR Act: Official Hashtags
Please use#FAIRActNow in every post and tag the FAIR Act (see tags based on each platform on previous slide).
Other relevant hashtags:
- #ISupportTheFAIRAct
- #RareDisease
- #PatientAdvocacy
The following posts can be used across Facebook, Instagram, LinkedIn, X/Twitter,and Truth Social and can be customized as you see fit.
For Instagram only, please remember to place the link in your bio and direct users there, rather than placing the link in your post, unless you post a story.
Example/Starter Post Text
Millions of Americans living with a rare disease are waiting for effective treatment options. The Fast-tracking Approval for Innovative Rare Disease Therapies (FAIR) Act, H.R. 7953, seeks to accelerate access to promising therapies while maintaining FDA oversight and safety standards.
Learn more and join the movement to support patients and families facing urgent unmet medical needs: FAIRActNow.com
[tag: FAIR Act] #FAIRActNow #RareDisease
The FAIR Act (H.R. 7953)would create a structured pathway for expedited review of clinical trials and marketing authorizations for certain therapies already approved by trusted international regulators. By accelerating FDA approvals in the United States, there is the potential to broaden access to innovative treatments for patients with rare diseases.
Learn more about the [tag: FAIR Act]: FAIRActNow.com
#FAIRActNow #RareDisease
Example/Starter Post Text
We support the [tag: FAIR Act] (H.R. 7953) because patients with rare diseases cannot afford unnecessary delays in accessing innovative therapies. By streamlining regulatory processes while preserving FDA oversight, the FAIR Act aims to get life-saving treatments to patients faster.
Take action today: FAIRActNow.com
#ISupportTheFAIRAct #FAIRActNow #RareDisease
I support the [tag: FAIR Act] for [NAME OF DISORDER] awareness because patients can’t wait. Together, we can help advance access to innovative therapies for rare disease communities.
Take action: FAIRActNow.com
#FAIRActNow #PatientAdvocacy #RareDisease
Example/Starter Post Text
More than 30 million Americans are affected by rare diseases, yet many conditions lack FDA-approved treatments. The [tag: FAIR Act] seeks to help close that gap by supporting faster access to innovative therapies.
Send a letter to your Representative or Senator in Congress and encourage support for the FAIR Act (H.R. 7953).
Find out more: FAIRActNow.com
#FAIRActNow #RareDisease
For the 30+ million patients with rare diseases and their families in the United States, access to new therapies is a race against the clock.
The [tag: FAIR Act] (H.R. 7953) is designed to accelerate access to innovative therapies and clinical trials while supporting continued FDA leadership in the review of rare disease treatments.
Take a stand and make a difference for American patients waiting for treatment: FAIRActNow.com
#ISupportTheFAIRAct #FAIRActNow #RareDisease
Example/Starter Post Text
Did you know that you can make a difference in the lives of Americans living with a rare disease?
We support innovation, patient access and rare disease communities – that’s why we endorsed the [tag: FAIR Act] (H.R. 7953). Together, we can help advance policies that support patients waiting for new treatment options.
Join the FAIR Act: FAIRActNow.com
#ISupportTheFAIRAct #FAIRActNow #RareDisease
