Resources
For Patients and Caregivers
Show your support for the FAIR Act by copying the text below and pasting it in an email to your member of Congress.
Visit www.house.gov/representatives/find-your-representative to find your congressional representative and congressional district.
SUBJECT LINE: Please Cosponsor the FAIR Act
Dear [STAFFER] or [To Whom It May Concern],
My name is [add name here] and I am passionate about advancing access to promising therapies for patients living with rare diseases. [If applicable, add a sentence here about your personal connection to the rare disease community, such as a family member, advocacy involvement, or organizational affiliation.]
I am writing as your constituent to urge [add your congressional representative’s name here] to cosponsor the FAIR Act (H.R. 7953), the Fast-tracking Approval for Innovative Rare Disease Therapies Act. This bipartisan legislation would help accelerate access to clinical trials and innovative therapies that have already been approved by trusted international regulatory agencies, offering renewed hope to patients and families facing serious and life-threatening rare diseases.
More than 30 million Americans are living with a rare disease, yet treatment options remain limited for the vast majority of patients. In some cases, individuals and families are forced to wait years for access to potential therapies that may already be available in other countries. The FAIR Act would establish a structured, harmonized pathway to reduce bureaucratic red tape, expand access to clinical trials, and help bring innovative treatments to patients faster while maintaining the U.S. Food and Drug Administration’s rigorous standards for safety and efficacy.
As a constituent of district [add congressional district here], I believe patients with rare diseases and their loved ones deserve timely access to every possible treatment option. I respectfully ask [add your representative’s name here] to support rare disease patients and their families by cosponsoring the FAIR Act.
Thank you for your time and consideration.
Sincerely,
[Add first and last name]
[Add street address]
[Add phone number/email]
Help spread the word about the FAIR Act, download, post, and encourage others to join the conversation and support this movement.
For millions of Americans living with a rare disease, every day matters. More than 30 million people are affected, and many still have no FDA-approved treatment available. The FAIR Act (H.R. 7953) is a bipartisan effort to help bring promising therapies to patients sooner. Learn more at FAIRActNow.com. #FAIRActNow
Size: 332KB File Type: JPG
For millions of Americans living with a rare disease, every day matters. More than 30 million people are affected, and many still have no FDA-approved treatment available. The FAIR Act (H.R. 7953) is a bipartisan effort to help bring promising therapies to patients sooner. Learn more at FAIRActNow.com. #FAIRActNow
Size: 333KB File Type: JPG
For millions of Americans living with a rare disease, every day matters. More than 30 million people are affected, and many still have no FDA-approved treatment available. The FAIR Act (H.R. 7953) is a bipartisan effort to help bring promising therapies to patients sooner. Learn more at FAIRActNow.com. #FAIRActNow
Size: 341KB File Type: JPG
The FAIR Act (H.R. 7953) is a bipartisan effort to accelerate access to innovative treatments for patients with rare and life-threatening diseases. Learn more and join the conversation at FAIRActNow.com. #FAIRActNow
Size: 212KB File Type: PNG
The FAIR Act (H.R. 7953) is a bipartisan effort to accelerate access to innovative treatments for patients with rare and life-threatening diseases. Learn more and join the conversation at FAIRActNow.com. #FAIRActNow
Size: 1.1MB File Type: PNG
The FAIR Act (H.R. 7953) is a bipartisan effort to accelerate access to innovative treatments for patients with rare and life-threatening diseases. Learn more and join the conversation at FAIRActNow.com. #FAIRActNow
Size: 443KB File Type: PNG
I support the FAIR Act (H.R. 7953) because accelerating access to potentially lifesaving treatments can make a real difference for patients and families. Let’s help bring promising therapies to those who need them most. FAIRActNow.com #FAIRActNow
Size: 179KB File Type: PNG
I support the FAIR Act (H.R. 7953) because accelerating access to potentially lifesaving treatments can make a real difference for patients and families. Let’s help bring promising therapies to those who need them most. FAIRActNow.com #FAIRActNow
Size: 1.4MB File Type: PNG
I support the FAIR Act (H.R. 7953) because accelerating access to potentially lifesaving treatments can make a real difference for patients and families. Let’s help bring promising therapies to those who need them most. FAIRActNow.com #FAIRActNow
Size: 390KB File Type: PNG
Change starts with people who speak up. I’m joining advocates, patients, caregivers and supporters in backing the FAIR Act (H.R. 7953). Add your voice to help advance solutions that could accelerate access to promising therapies for rare disease patients. Learn more at FAIRActNow.com. #FAIRActNow
Size: 199KB File Type: PNG
Change starts with people who speak up. I’m joining advocates, patients, caregivers and supporters in backing the FAIR Act (H.R. 7953). Add your voice to help advance solutions that could accelerate access to promising therapies for rare disease patients. Learn more at FAIRActNow.com. #FAIRActNow
Size: 1.3MB File Type: PNG
Change starts with people who speak up. I’m joining advocates, patients, caregivers and supporters in backing the FAIR Act (H.R. 7953). Add your voice to help advance solutions that could accelerate access to promising therapies for rare disease patients. Learn more at FAIRActNow.com. #FAIRActNow
Size: 398KB File Type: PNG
Download a FAIR Act banner and a profile frame to show your support and help spread awareness across your social networks.
